No Fabulous News Yet

I wish I had something really wonderful to say but I don't.  There is some progress being made but it's very slow going.  Last night they managed to get him off the nitric oxide so that's gone. But they had turned the oxygen on the ventilator up to 100% to offset that.  The plan was to then turn it down by 10% every hour if he tolerated it.  This morning he is on 70% so they weren't able to get it turned down as much as they would have liked to.

They started a new medication, called amiodarone during the night, to help with all the PVCs and NSVT runs.

They don't seem to be too concerned about his inability to come off the vent.  They just want him more stable before he comes off.  The nurse mentioned that he is experiencing a 'little' cardiogenic shock.  Only click the link to read about it if you are not faint of heart :p

What a Depressing Day

I know I am making it sound worse than it is but I really am down today.  It sounds like they won't close him until Tuesday.  I guess they don't feel his right heart is doing as much as they would hope for.  He's made some improvement, but not a lot.  The fever was down most of the day but going up a bit tonight.  His WBC is normal though.  The respiratory therapist showed me his xray from yesterday and today, and it is showing signs of improvement....as far as clearing fluid out of his lungs.  So let me be clear....other than the not being able to close his chest yet, there are no setbacks at least.  Just not as much improvement as I had hoped for.

I think today being Superbowl Sunday, has made me feel worse.  Most years we have watched the Superbowl.  So I watched with his parents but it just wasn't the same.  It's so hard to not be able to interact with him.  I don't care about all the machines...if only he could communicate with me.  I just miss him so damn much.  Very emotional today.  And he will be so disappointed because his mom will go home before he wakes up.