Yay! The pump is out along with the catheter they were using for plasmaphoresis. He's doing well thus far without it. He's maintaining his cardiac output with the help of meds only. They are trying to wean off one of the meds, switching to oral, so he can transfer to 4w. Hoping that will happen tomorrow. He has to lie flat for 8hrs after removal of pump then hopefully can get up and moving around a little. He's been quite the trooper given he's been in this position for 5 days now, but getting a little crabby now. Says it feels like he's back at day 1.....sore, tired, uncomfortable.
He's doing another dose of thymoglobulin (immunosuppressive drug) later today so they pre-medicate with benadryl. So much for sleeping tonight! He's been snoozing the last couple hours from the light sedation for the pump removal.
They placed a PICC line but placement isn't optimal for some of what they are needing so he has to keep the catheter in his neck - I guess the PICC line won't work for the plasmaphoresis tomorrow. Boo.
I'm going to play with the periscope app next so that maybe he can watch the girls practice a little and see Libby's band performance Thursday night.
That's about it for now! Thank you again for all your support. Had meals the last two nights from one of Libby's teammates from last year and one of the fab doulas I know. We have received gift cards from two other families so help fill in blanks... big help for this weekend. Daja and Libby are doing a sand tournament Sunday so I know they'll be hungry afterwards! I'm heading back to work tomorrow so things are going to be more complex but my mom is super helpful. I'll probably take a couple days off once he's discharged to help him get settled in.
No comments:
Post a Comment